Supporting Children with Long Term Complex Conditions
This unique NHS paediatric conference will focus on how to improve patient pathways and drive forward care closer to home for children with complex long term conditions. When these children are living longer, this dedicated day will discuss how to improve transition and palliative care processes but also plan for their future to ensure they have the best possible quality of life.
Utilise this interactive day to share best practice advice and new ideas for tackling your mutual challenges. When transition to adult services is a key challenge across a number of LTCs, benchmark your service and see how you could implement effective improvements. You will leave this day with an action plan to drive forward your LTC services, build patient pathways and provide improved and supported care for children with complex conditions.
By focusing on practical guidance to enable tangible change, you will leave this NHS conference ready to:
- Progress care closer to home and step down care
- Develop innovative palliative care processes
- Promote quality of life for LTC children
- Implement effective transition procedures
- Build relationships with families, parents and siblings
- Improve patient pathways for long term complex children
- Work effectively across multi-disciplinary teams
- Improve the mental health and wellbeing of complex LTC children
- Drive forward paediatric complex care in the community
This paediatric NHS conference has been specially designed to provide to the needs of:
- Children's Community and Continuing Care Services: Lead Nurse, Community Nurse, Continuing Care Manager, Team Leader
- Children’s Complex Healthcare: Nurse Manager, Complex Needs Nurse, Complex Care Co-ordinator
- Paediatric Services: Consultant Paediatrician, ? Paediatric Surgery Consultant, Paediatric Nursing Lead, Paediatric Continuing Care Coordinator
- Transition Leads: Specialist Nurse, Transition Practitioner
- CCGs: Lead Commissioner, Children's Continuing Healthcare Assessor
- CAMHS: Clinical Director, Learning Disability Nurse Specialist for Complex Needs
Have you considered sponsoring or exhibiting at this day? Our events are carefully crafted and through our rigorous research we focus on and address the specific themes and topics that are driving the NHS forward. We pride ourselves on working with you to ensure that we recommend only those events that reflect your target audience and put forward solutions that provide the desired outcomes and results.
If you belong to an association or network that is related to Paediatric Services, SBK would welcome working with you. We can offer your members or network a discounted rate and a link with your website here:
Please email Nichola.email@example.com for further details
This event follows two successful Long Term Ventilation conferences held in September 2017: ‘Practicalities of Delivering Paediatric Long Term Ventilation’ and ‘Caring for Children on LTV in District General Hospitals’ which attendees described as “Interesting days with high quality and very knowledgeable speakers” and “Fantastic days! Comprehensive and informative sessions”
View further details and find out how to buy the documentation for Caring for Children on LTV in District General Hospitals
|9.00||Registration, refreshments and networking|
|9.30||Chair’s opening remarks|
Benita Powrie, Head of Service Integrated Children's Additional Needs and Designated Clinical Officer, Leeds Community Health Care NHS Trust
|9.40||First insight and implementation advice for RCPCH guidance for ongoing healthcare needs |
Insight into how the guidance came about, what is included within it and this means for children with ongoing healthcare needs
Explore the ins and outs of the document and assess how the guidance will impact on your service, staff and patients
Overcoming implementation challenges: what will be expected of organisations and services?
Melissa Ashe, Policy Lead, Royal College of Paediatrics and Child Health
Overcoming transition barriers
|10.20||Establishing an effective approach to your transition pathways for CYP requiring long term support|
Working together to develop whole care pathway including health, social care and education
Establishing a co-ordinated multi agency transition pathway and using the Ready Steady Go Programme
Implementing the new NICE guidance to improve transition for CYP with long term conditions
Louise Porter, Lead Nurse, Healthcare Transition of Children and Young People, The Leeds Teaching Hospitals NHS Trust
|11.20||Case study: Overcoming the complexities of transition for children with complex LTCs|
How the team works and supports the children: the role of transition care co-ordinators
Ensuring safeguarding and protection of vulnerable children and young people and how MDTs should work together to overcome the challenges
Measuring the impact of a dedicated team for complex LTC transition and how to tackle to common obstacles
Jane Wallington, Transition Healthcare Coordinator, Bradford Teaching Hospitals NHS Foundation Trust
Claire Causer, Transition Healthcare Coordinator, Bradford Teaching Hospitals NHS Foundation Trust
Moving LTCs closer to home
|12.00||Developing practices and standards to drive forward support for patients in the community |
Implementing a clearer pathway into community care for individuals with multiple health needs
Understanding continuing care and the levers you can use to unblock issues
Why being at home is better: how to empower families to take ownership for their child’s care?
Sue Bottomley, Finance and Commissioning Lead, Personal Health Budget and Integrated Personal Commissioning Teams, NHS England
Enhancing palliative care and support
|1.50||How to provide continuing care for children with long term life limiting conditions |
Working with palliative care teams to ensure that children continually have the best quality of life
How to conduct effective and appropriate forward planning involving the patients and their families
Exploring the outcomes for effective palliative care: impact on staff, patient and family experiences
Sarah Glencrose, Lead for Continuing Care, Hounslow and Richmond Community Healthcare NHS Trust
Lisa Devine, Lead for Palliative Care, Hounslow and Richmond Community Healthcare NHS Trust
Supporting patients, families and siblings
|2.30||Parent and patient experience of complex long term services for CYP: discharging home|
Exploring varying pathways for complex LTC children and where they go if they aren’t discharged home
How healthcare professionals can work with families to manage complex, life limiting and long term conditions
The best and the worst: examples of great care and service and lessons learnt along the way
Sue Longman, Birmingham Women’s and Children’s NHS Foundation Trust
|3.30||Addressing the mental wellbeing of siblings of children with long term complex conditions: a PICU perspective|
Understanding sibling experience whilst caring for an LTC paediatric patient
Exploring the practicalities of sibling support
How to include and engage with siblings in family-centred care: measuring outcomes
Ella Reynolds, Family Liaison Junior Sister, Birmingham Women’s and Children’s NHS Foundation Trust
|4.10||Close of day|
This day is being produced by Hope Frost. If you are interested in speaking please contact Hope at firstname.lastname@example.org or by calling her on 01732 897788.
This pricing structure applies across this conference and related events
- NHS or Public Sector for one place £399 + VAT
- NHS or Public Sector for two or three places (each) £299 + VAT
- NHS or Public Sector for four places (each) £279 + VAT
- Commercial Organisation for one place £699 + VAT
- Commercial Organisation two or three places (each) £599 + VAT
- Commercial Organisation four or more places (each) £579 + VAT
Do you really want to attend an event, but can’t see funding being available? SBK Healthcare have put together a page of cost saving tips, travel advice and useful ideas to help you to build your business case. Click here to view the justify your attendance document.
- Bed & Breakfast accommodation for Tuesday 19th March 2018 at Hilton Leeds City, Neville Street, Leeds : £110 + VAT (subject to availability. Lower rates may be found by booking directly with on-line accommodation website)
Bed and breakfast accommodation is available for this event at a specially discounted rate. Simply tick the dates that you wish to book when making your booking and we will contact you directly for your credit card guarantee details.
We regret that bookings for bed and breakfast accommodation cannot be confirmed without full credit card details. Your credit card will only be charged in the event that the invoice has not been settled one month following the event and only with prior communication.
If your funding has not yet been secured or you would like to hold your place with no obligation, you can reserve your place with us. Please email email@example.com with your details:
- Booking contact: Name, job title, department, email, telephone
- Event(s) to reserve for: Title, date
- Delegate details (for each delegate): Name, job title, department, email, telephone
- Organisation details: Name, address
Alternatively you can make a confirmed booking by sending the above information to firstname.lastname@example.org
To modify an existing registration, please contact email@example.com
Hilton Leeds City
Neville Street, Leeds, LS1 4BX, Tel: 0113 244 2000.
Hilton Leeds City is located very close to the Leeds City Train Station with approximately a three minute walk to the hotel. The hotel also has an onsite car park for 80 vehicles. Large cars and 4x4's can access and be parked with care, but please be aware of tight turning areas.
Travel is not included in the conference fee. It is the responsibility of each delegate to make their way to the conference venue in adequate time. The conference organisers are not liable for any delays or non-attendance resulting from delayed or suspended transportation.
A full refund of fees will be made only for cancellations received in writing 28 days before the date of the event (less £90 administration charge). Notice of cancellation must be received in writing and submitted by contacting us here. Should you need to cancel your registration after this date, the registration fee remains payable in its entirety although a substitution will be accepted and conference documentation will be provided. You are still entitled to conference documentation in the event of cancellation.
Substitutions & Name Changes
Substitutions for delegates unable to attend after registering are acceptable at any time. To inform us of a name change, please contact us here. It may be necessary for reasons beyond the control of the conference organisers to alter the venue, content, speakers or the timing of the programme. We will endeavour to keep you abreast of such changes but any unavoidable change to the conference format will not constitute a reason to refund the conference fee. Should the event be postponed, we will endeavour to reschedule the event. If, for reasons beyond the control of the conference organiser, the event is cancelled, a full refund will be made. We do not accept any liability for any incurred costs resulting from a postponement or cancellation.
Certification of Attendance
A certificate for Continuing Professional Development will be given to each participant who completes the course, as a record of your continuing professional training and development.
Registration fees are payable in advance. The fee includes documentation, refreshments and lunch, it does not include travel costs or accommodation. If your fee has not been received prior to the event, delegates without proof of payment will be asked for either a credit card guarantee on the day or to sign a proof of attendance form.
Your details will be held on our database to enable us to process your order and so that you can be kept up to date with relevant details of future events. Sometimes they may be made available to external organisations for relevant marketing purposes. If you do not wish to receive such information please write to: Database Manager, SBK (UK) Ltd, 10 Churchill Square, Kings Hill, West Malling, Kent ME19 4YU.
If you are unable to attend or would like to pick up an additional set of documentation on the day, the event documentation is available for purchase at £89 per set.