Calling all Paediatric Consultants and Nurses working with long term ventilation patients. This virtual conference will bring you together with your colleagues from across the country to find out what is happening and delve into your common challenges of transition, discharge and ethical decision making. Through both engaging educational presentations and excellent networking opportunities you will come away with practical solutions that will work for you and your service.

5 hours Continuing Professional Development: what you will learn
Find out more about the challenges that are being faced and overcome in other units at this uniquely interactive forum where you will be sharing great practice on:
Attend this online NHS event from the comfort of your own home
Book your place now and be part of this inspiring exchange of experiences and ideas where you will be:
9:00 |
Join, tech support and opportunity to network in breakout rooms
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9:30 |
Introduction, instructions and chair’s opening remarks
Dr Richard Chavasse, Consultant in Paediatric Respiratory Medicine, St George's University Hospitals NHS Foundation Trust
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Evolving a Network Approach to LTV | |
9:40 |
Case study: Setting up and developing your LTV network
Marilyn McDougall, Consultant in Children's Intensive Care, and Clinical Director, Miriam Cabib, Project Manager, and Jacqueline Agyekum, AHP Lead for LTV, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust and South Thames Paediatric Network
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Developing Transition Pathways | |
10:05 |
Enabling transition into adult services: building a pathway for adolescent LTV patients
Dorthe Grainger, Consultant, Manchester University NHS Foundation Trust
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10:30 |
Your questions and answers with the speakers
Marilyn McDougall, Miriam Cabib, Jacqueline Agyekum and Dorthe Grainger
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10:40 |
Interactive discussion: Share your experiences of Aerosol Generating Procedures and Covid-19
Breaking into small groups to discuss and share your experiences on this important topic with your fellow attendees
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11:00 |
Screen break
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11:10 |
Interactive discussion feedback: Share your experiences of Aerosol Generating Procedures and Covid-19
Moderators will go on screen to feedback what has been discussed and learnt in the individual breakout rooms. Whilst the presenters are speaking, you can feedback your comments and questions using the chat box function.
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Ensuring Ethical Decision Making | |
11:20 |
Meeting the ethical expectations and decision making for Long Term Ventilation
Tom Hilliard, Consultant Respiratory Paediatrician, University Hospitals Bristol NHS Foundation Trust
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12:05 |
Your questions and answers with the speakers
Tom Hilliard
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12:15 |
Interactive discussion: Engaging with the families of LTV children and young people to ensure ethical decision making and fully supported transition
Opportunity for attendees to share their experiences in meeting rooms, then return to the main conference to feedback via the chat function.
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12:35 |
Screen lunch break
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1:10 |
Interactive discussion feedback: Engaging with the families of LTV children and young people to ensure ethical decision making and fully supported transition
Moderators will go on screen to feedback what has been discussed and learnt in the individual breakout rooms. Whilst the presenters are speaking, you can feedback your comments and questions using the chat box function.
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Establishing Timely and Safe Discharge Home | |
1:20 |
Practicalities of discharging Long Term Ventilation patients: overcoming the common challenges
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Aerosol Generating Procedures (AGP) and Covid-19 | |
1:45 |
Case study: Providing education and getting children on AGP back to school
Rebecca Daniels, Queen’s Nurse, Community Children’s Matron, East London Foundation NHS Trust
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2:10 |
Your questions and answers with the speakers
Rebecca Daniels
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2:20 |
Interactive discussion: Exploring the different options when a child on Long Term Ventilation is unable to go home
Opportunity for attendees to share their experiences in meeting rooms, then return to the main conference to feedback via the chat function.
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2:40 |
Screen break
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2:50 |
Interactive discussion feedback: Exploring the different options when a child on Long Term Ventilation is unable to go home
Moderators will go on screen to feedback what has been discussed and learnt in the individual breakout rooms. Whilst the presenters are speaking, you can feedback your comments and questions using the chat box function.
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Increasing Joined-Up Working | |
3:00 |
Improve your Patients Pathways and Support their Discharge Process
Gemma Williams, Clinical Practice Educator, Acorns Children’s Hospice and Lesley Johnson, Birmingham Women's and Children's Hospital NHS Foundation Trust
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3:25 |
Your questions and answers with the speakers
Gemma Williams and Lesley Johnson
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3:35 |
Chair’s final remarks and close of conference
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Benchmark and progress your paediatric LTV care with...
Expected attendees
This online meeting is ideal for NHS professionals working with children on Long Term Ventilation in Acute Trusts, Community Services and CCGs and has been attended previously by the following job titles:
Past attendee feedback
“It has been really informative and great to network outside of the London teams. Really good examples of joining up care and very inspiring.”
Barts Health NHS Trust - Providing Support for Children on Long Term Ventilation, Tuesday 9th March 2021
“Very informative, great to hear so many experiences from others.”
Isle of Wight NHS Trust - Providing Support for Children on Long Term Ventilation, Tuesday 9th March 2021
“Well organised, good speakers, an excellent day - thank you.”
Acorns Children's Hospice - Providing Support for Children on Long Term Ventilation, Tuesday 9th March 2021
“It was good to get in touch with different nurses from different hospitals and share their views and experience.”
Barts Health NHS Trust - Providing Support for Children on Long Term Ventilation, Tuesday 9th March 2021
An online forum like no other…
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But don't take our word for it. We have had some excellent feedback from attendees to the forums that have been held to date:
"Forum was managed extremely well, and very professional"
IAPT National Networking Online Forum 2021 - 21st January 2021
“I am sure like everyone else I was apprehensive with going online, not sure how we could network, the ability for all participant's to participate and the quality of the presentations - all my fears were diminished this turned in to be a great day, networking, leading and sharing still occurred and links still formed. The presentations were excellent and the quality of the forum and set up great and so easy to follow and timing excellent.”
Reduce Paediatric Emergency Attendance Online Conference – 8th October 2020
“The conference has been far more engaging than in a conference centre. This I think is because of the ability to participate in chat throughout and the use of the breakout discussions.” “Excellent day! Organisation was great - loved the break out rooms for chat. Virtual chat added another really useful way to interact during the day, which isn't available to us at the physical conferences.”
Leading Change in Clinical Coding Online Conference - 11th September 2020
"Very informative, lots of opportunity for discussions and very well organised virtually"
Providing Support for Children on Long Term Ventilation - Tuesday 9th March 2021
"I enjoyed the group chats networking listening to others experiences, I also like that there was a lead on each group so the chats were influenced and no awkward silences that can occur on web meets. I thought the larger talks were really good and easy to listen to."
Modernising Outpatient Services Online Conference – 16th September 2020
“This is my first experience of an online conference and thoroughly enjoyed it. Wasn't sure what to expect. Would recommend to colleagues to attend future events” “This has to be the best online conference I have been to, I really enjoyed the breakout rooms.”
Advancing Ulcer Care Management Online Forum – 29th September 2020