Come away from this one day CPD course with solutions to your collaborative working challenges and the tools to deliver supportive care and ensure quality of life. This is a great opportunity for you to review your approach to difficult conversations and identify how to improve communication so that you are effectively supporting your paediatric palliative and end of life patients.
4.5 hours Continuing Professional Development: what you will learn
This well-pitched, knowledge-rich day will provide hands-on case study presentations and relevant discussions on:
- Understanding the importance and nuances of respect in Advance Care Planning
- Driving forward multi-agency working to improve packages of care
- Working together to deliver an effective and inclusive ACP
- Effective collaboration to support and care for CYP with multiple health conditions
- Supporting families and carers to build honest and practical care packages
- Creating an MDT approach to escalate treatment plans
- Managing effective joint working to achieve the chosen place of care
- Finding courage for difficult conversations and ethical decision making
- Delivering bereavement support with patients, families and loved ones
Meet your education and training needs in your own time
Take away ideas from the trailblazers and adapt them for your own service, plus benefit from:
- 4.5 CPD hours of presentation and speaker Q&A
- Featuring engaging video and accompanying slides
- Available at £299 + VAT for NHS and public sector professionals
- Download and view in your own time
- CPD Certificate issued to you after viewing the video
Introduction, instructions and chair’s opening remarks
Carrie James, Associate Designated Clinical Officer, SEND
Advance care planning support: creating a suitable advance care plan (ACP)
Jess Donnelly, Paediatric Community Nursing Specialist Nurse, Hounslow and Richmond Community Healthcare NHS Trust
Questions and answers with Jess Donnelly
|Improving care packages|
Improving care and experiences of YPs with complex and life-limiting conditions
Carrie James, Associate Designated Clinical Officer, SEND joined by Hannah Hodgson, internationally recognised and award winning Poet, Writer, Palliative Care Patient and Advisory Consultant
|Managing treatment plans|
Effectively managing medical complexities of palliative children and young people
Dilini Rajapakse, Consultant in Paediatric Palliative Medicine, Great Ormond Street Hospital for Children NHS Trust
Questions and answers with Dilini Rajapakse, Carrie James and Hannah Hodgson
Deteriorating Gastrointestinal Dystonia in the child with complex neurodisability - supporting collaborative decision making and treatment plans
Su Bunn, Paediatric Gastroenterology Consultant, NHS Grampian
Case study: Collaborative and coordinated community care to achieve a choice in place of death
Louise Esson, Diana Children's Nurse, Children's Hospices Across Scotland
Questions and answers with Su Bunn and Louise Esson
Linking in with hospices: supporting palliative patients and their families
Christine Mott, Paediatric Palliative Care Physician and General Pediatrician, Acorns Hospice
Questions and answers with Christine Mott
Conducting compassionate conversations for healthcare professionals
Clare Fuller, Advance Care Planning Advocate, Educator, Coach Speak For Me
Questions and answers with Clare Fuller
Chair's closing remarks and close of day
Your confirmed speakers:
Carrie is a NHS Leadership Academy Graduate and Queens Nurse with a passion for improving community services for children, young people and their families. Carrie has previously worked as a Community based Case Manager and developed transition pathways for young people with long term conditions, disabilities, complex needs and life limiting conditions. Carrie worked with NHS England and was invited to speak at a shared learning event and the work of the team was referenced in an NHS Confederation Report ‘Children and young people’s health and well-being in changing times’ as an example of good practice.
Employed by Hospice UK for a fixed term, Carrie lead a Transition Programme with the aspiration to further improve healthcare transition for young people with complex and life limiting conditions. Carrie was involved in developing a National Network and worked with colleagues on the joint revision of Together for Short Lives Stepping Up Pathway (published Feb 2023). Carrie presented at the Hospice UK National Conference twice and each time was joined by Young People sharing their own experiences. Carrie worked with Young Adults, an Artist and a Film Editor to record and document Lived Experience.
Carrie now works for an Integrated Care Board as an Associate Designated Clinical Officer for SEND (0-25), where she continues to work alongside commissioners and stakeholders to ensure children and young people have the right health support to achieve the best outcomes.
Jess is a Paediatric Community Nursing specialist nurse, covering both Hounslow, North West London, and Richmond in South West London. Since joining the trust in 2016, Jess has worked alongside tertiary palliative care teams and local hospices to support families of children at the end of life.
From reviewing NICE guidance and recognising gaps, it was recognised the importance of children’s community nurses roles within advanced care plans and the importance of including families in these decisions.
Louise is our Diana Children’s Nurse based in the Royal Aberdeen Children’s Hospital.
Louise alongside our CHAS funded palliative care consultant supports families whose children have palliative care needs from the time of diagnosis to end of life.
Louise trained as a General Nurse in Calderdale, West Yorkshire in 1991 before completing Children’s nursing registration in 1994 at Huddersfield University. She working in both Paediatric surgery and medicine before transferring to Bradford neonatal intensive care. Louise returned to Aberdeen in 2001, where she went on to manage the medical and oncology unit within RACH before joining CHAS as a Diana children’s nurse in 2019.
Working in collaboration with the local health and social care partnership Louise provides specialist support in symptom management, complex decision making and anticipatory care planning as well as support at end of life. Louise provides ongoing supports to families after death ensuring appropriate bereavement supports are in place for our families locally.
Louise works with RGU to deliver education in palliative care topics to nursing students.
As part of the role Louise manages the CHAS at Home service offering at home support for children and families in the local area. This service has now been affiliated with RGU to provide a practice placement for future nurses. The service also provides a home support volunteer service giving families the practical supported needed when caring for a child with a palliative condition.
“Since joining CHAS in 2019 I have felt privileged to have been given the opportunity to be part of a family’s journey however long or short that may be. To assist in helping them explore what is most important to them and make the small things count has allowed me to grow both personally and professionally. The power of a family’s selfless dedication when a child is approaching the end of life is the most incredible thing to witness”
- £299 + VAT for you to download and view in your own time
- Click on 'Book Place' and complete your details
Past attendee feedback
“You did such a fantastic job from start to finish, a great support for me and each of the guest speakers - thank you!”Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“It was an excellent day and congratulations to your team for organising this”Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Many thanks for your great organisation on the day”Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Good mix of speakers / topics covered. Breakout rooms are a good addition to be able to find out what other teams are doing across the country“Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Hannah gave such a thought provoking talk. An inspiring young lady who gives a personal perspective to your thoughts around transitioning palliative care“Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Really enjoyed the course, really given a good insight to challenges we face with palliative patients, nice to speak to others“Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Very good as able to speak to colleges across the country highlighting area's of improvements that can be used in our area of work“Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Very comprehensive, well organised. Excellent speakers. Very informative“Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
“Interesting, relevant to clinical practice, informative“Delivering Supportive Paediatric Palliative and End of Life Care, June 2023
If you purchase and view the presentation video and accompanying sides, you will be in good company! The following is an insight into the job titles and organisations who came to Delivering Supportive Paediatric Palliative and End of Life Care when it was held on Tuesday 27th June 2023: