Video & Slides

Featuring presentation videos and accompanying slides: This motivating and enlightening multidisciplinary study day will bring together nurses, consultants and team leads from palliative care, community and hospice teams. With case studies sharing real-life experiences and insightful guidance, you will leave this online forum with the knowledge and inspiration to improve your collaborative working. Take one day out and enhance your support for palliative and end of life children, adolescents and their families or carers. 

SBK have now gone paperless! 

If you attended the day we are currently editing and collating the event documentation - please allow 5 working days for these to be made available and you will receive these, as well as your CPD certificate via email.

Improving Paediatric Palliative and End of Life Care
On-demand 4 hours £299 + VAT

4 hours Continuing Professional Development: what you will learn

Are you continually striving to improve your support of paediatric palliative and end of life patients? If yes, then this online forum is for you. Book your place and refocus on:

  • Developing appropriate Advance Care Plans with families
  • Improving the management of GI symptoms
  • Bridging the gap between paediatric and adult palliative care services
  • Building a smooth transition from paediatric to adult palliative care services
  • Effectively managing medical complexities
  • Enhancing outcomes through respite and short breaks
  • Progressing joined-up working between palliative care, specialist teams and hospices
  • Providing support for families and siblings from diagnosis to end of life

Meet your education and training needs in your own time

Take away ideas from the trailblazers and adapt them for your own service, plus benefit from:

  • 4 CPD hours of presentation and speaker Q&A
  • Featuring engaging video and accompanying slides
  • Available at £299 + VAT for NHS and public sector professionals
  • Download and view in your own time
  • CPD Certificate issued to you after viewing the video

7 presentations | 14 parts | 4 CPD hours | Filmed on Wednesday 8th December 2021

1
Introduction, instructions and chair’s opening remarks
Dr Susie Holt, Palliative Care Consultant, Alder Hey Children's NHS Foundation Trust and Claire House Children's Hospice and Lesley Fellows, Nurse Consultant, Claire House Children's Hospice
Advance Care Plans
2
Working with children and their parents or carers to develop appropriate Advance Care Plans
Jess Donnelly, Paediatric Community Nursing Specialist Nurse, Hounslow and Richmond Community Healthcare NHS Trust
Supporting the families
3
Respite and short breaks: improving outcomes for palliative patients and their families
Kate Jones, Deputy Head of Care, Hope House and Ty Gobaith Childrens Hospices
4
Questions and answers with your speakers
5
Transitioning to adult palliative care
6
Supporting young adults to transition from children’s to adult services
Dr Helen Kerr, Senior Lecturer, Queen's Unviersity Belfast
7
Questions and answers with your speakers
Collaborative working
8
Effectively managing medical complexities of palliative children and young people
Dr Dilini Rajapakse, Consultant in Paediatric Palliative Medicine, Great Ormond Street Hospital for Children NHS Trust
9
Working across borders to improve care for palliative CYP
Dr Gillian Hughes, Consultant in Paediatric Palliative Medicine, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust
10
Questions and answers with your speakers
Symptom management planning
11
Improving the management of GI symptoms for children and young people at the end of life
Louise Esson, Diana Children's Nurse, Children's Hospices Across Scotland and Dr Sue Bunn, Paediatric Gastroenterology Consultant, NHS Grampian
Accessing support for families
12
Effectively collaborating to achieve withdrawal of life sustaining treatment in setting of choice
Lesley Fellows, Nurse Consultant, Claire House Children's Hospice and Dr Sarah Mahoney, PICU Consultant, Alder Hey Children’s NHS Foundation Trust
13
Questions and answers with your speaker
14
Chair’s closing remarks and close of day

Your confirmed speakers:


Job Title:
Palliative Care Consultant
Organisation
Alder Hey Children's NHS Foundation Trust and Claire House Children's Hospice
Biography

Job Title:
Nurse Consultant
Organisation
Claire House Children's Hospice
Biography

Lesley Fellows qualified as a RN (child) in 1998 from the University of Chester and has since completed a BSc in professional Practice and MSc in palliative and end of life care. Her career started on a children’s ward in North Wales which then progressed into the community, supporting children with life limiting conditions. 

Lesley joined Claire House children’s Hospice in 2003 and set up the Hospice to Home Service in 2007. Such service has significantly grown and now the 24/7 Rapid Response services is commissioned to provide end of life care across Wirral, Cheshire and Merseyside. 

As a Nurse Consultant Lesley is passionate about nurse led palliative care, promoting choice in place of care and palliative care in the critical care environment. Lesley is the nurse representative on the Executive committee for the APPM and is working nationally with Faculty of Intensive Medicine to produce best practice end of life care guidance within the critical care setting.


Job Title:
Paediatric Children's Nursing Specialist Nurse
Organisation
Hounslow and Richmond Community Healthcare NHS Trust
Biography

Job Title:
Deputy Head of Care
Organisation
Hope House and Ty Gobaith Childrens Hospices
Biography

Karen Wright qualified as an RGN in 1991 and as a RSCN in 1994, amongst many other courses she has since completed her MSc in Paediatric Palliative Care. Karen has spent time working in various locations around the UK and abroad before joining Hope House Childrens Hospices in 1997 as a nurse on the care team. She set up the Outreach Nursing service and progressed onto managing the multi-disciplinary community team before becoming the Director of Care in 2018. 

Karen has always been passionate about palliative care and her career has always contained an element of palliative care along the way. She is particularly passionate in ensuring families have the knowledge of all services available to them, thus ensuring they have the support and are enabled to access the most appropriate services to support them and their family.


Job Title:
Senior Lecturer
Organisation
Queen's University Belfast
Biography

Helen Kerr PhD, RN, MSc, BSc(Hons) Dip Counselling, PGCHET is a Senior Lecturer in the School of Nursing and Midwifery (SoNM), Queen’s University, Belfast (QUB). Helen is a registered Specialist Nurse in oncology with the Nursing and Midwifery Council (NMC) with previous nursing and counselling experience in oncology and palliative care.  Helen is the Lead for the Specialist Practice in Oncology pathway at the SoNM, QUB and a Senior Fellow with the Higher Education Academy.  Health services research funded by the Public Health Agency and All Ireland Institute of Hospice and Palliative Care (AIIHPC) as part of a PhD identified the factors associated with a successful transition from children’s to adult services from the young adult, parents/carers and healthcare professionals’ perspectives.  

Helen won the International Journal of Palliative Nursing Researcher of the Year award in 2017 and was runner up in the Royal College of Nursing (RCN), Northern Ireland Nurse Researcher of the Year in 2016 for this research.  A Marcia Mackie award supported the development of this research with international collaborators at the University of Toronto, Canada and clinicians at the Hospital for Sickkids. Toronto. Subsequent research was focused on the use of a Healthcare Passport for young people with life-limiting conditions.  Helen is secretary for the Palliative Care Research Forum Northern Ireland (PCRFNI) executive committee and member of the All Ireland Institute of Hospice and Palliative Care (AIIHPC) Palliative Care Research Network.


Job Title:
Consultant in Paediatric Palliative Medicine
Organisation
Great Ormond Street Hospital for Children NHS Trust
Biography

Job Title:
Consultant in Paediatric Palliative Medicine
Organisation
Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust
Biography

Job Title:
Diana Children's Nurse
Organisation
Children's Hospices Across Scotland
Biography

Louise is our Diana Children’s Nurse based in the Royal Aberdeen Children’s Hospital. 

Louise alongside our CHAS funded palliative care consultant supports families whose children have palliative care needs from the time of diagnosis to end of life. 

Louise trained as a General Nurse in Calderdale, West Yorkshire in 1991 before completing Children’s nursing registration in 1994 at Huddersfield University. She working in both Paediatric surgery and medicine before transferring to Bradford neonatal intensive care. Louise returned to Aberdeen in 2001, where she went on to manage the medical and oncology unit within RACH before joining CHAS as a Diana children’s nurse in 2019. 

Working in collaboration with the local health and social care partnership Louise provides specialist support in symptom management, complex decision making and anticipatory care planning as well as support at end of life. Louise provides ongoing supports to families after death ensuring appropriate bereavement supports are in place for our families locally. 

Louise works with RGU to deliver education in palliative care topics to nursing students. 

As part of the role Louise manages the CHAS at Home service offering at home support for children and families in the local area. This service has now been affiliated with RGU to provide a practice placement for future nurses. The service also provides a home support volunteer service giving families the practical supported needed when caring for a child with a palliative condition. 

“Since joining CHAS in 2019 I have felt privileged to have been given the opportunity to be part of a family’s journey however long or short that may be. To assist in helping them explore what is most important to them and make the small things count has allowed me to grow both personally and professionally. The power of a family’s selfless dedication when a child is approaching the end of life is the most incredible thing to witness”


Job Title:
Paediatric Gastroenterology Consultant
Organisation
NHS Grampian
Biography

Job Title:
PICU Consultant
Organisation
Alder Hey Children’s NHS Foundation Trust
Biography

Sarah is a Consultant Paediatric Intensivist at Alder Hey Children’s Hospital. She is PICU Lead for Training, Trauma and HCID. Sarah was elected as medical representative to the PCCS Council in October 2017.

Her interests are training, trainee and Fellow recruitment and Education, particularly simulation.

Pricing structure

  • £299 + VAT for you to download and view in your own time
  • Click on 'Book Place' and complete your details

Purchase Fees

You will receive an instant payment option or invoice on completing the booking form. Once your payment has been made, you will be given the access details to view the presentations on-demand.

Certification of Attendance

Please notify us when you have viewed the complete set of presentations. A certificate for Continuing Professional Development will then be sent to you so that you have a record of your continuing professional training and development.

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Past attendee feedback

Held as an interactive online forum and now available to you as a series of video presentations, here is some feedback on the excellent content from the professionals who attended:

“Excellent day, well planned and some really good speakers with so much knowledge”

Improving Paediatric Palliative and End of Life Care, December 2021

”Varied and knowledgeable speakers. Pitched well”

Improving Paediatric Palliative and End of Life Care, December 2021

“Great day with brilliant speakers. It was organised really well and efficiently”

Improving Paediatric Palliative and End of Life Care, December 2021

Who came?

If you purchase and view the presentation video and accompanying sides, you will be in good company! The following is an insight into the job titles and organisations who came to Improving Paediatric Palliative and End of Life Care when it was held on Wednesday 8th December 2021:

Job titles


  • Associate Palliative Care Nurse Specialist
  • Band 6 Sister
  • Band 6 Sister
  • Children's Community Nurse
  • Clinical Lead
  • Clinical Matron
  • Clinical Nurse Coordinator for Children with Life Limiting Conditions
  • Clinical Nurse Specialist
  • CNS PPC
  • Community Children's Nurse
  • Community Children's Nurse Team Leader
  • Consultant in Paediatric Palliative Medicine
  • Consultant in Palliative Care
  • Consultant Paediatrician/Senior Lecturer in Paediatrics SI Community Paediatrics
  • Deputy Head of Care
  • Diana Children's Nurse
  • Nurse
  • Nurse Consultant
  • Paediatric Clinical Nurse Specialist
  • Paediatric Community Nursing Specialist Nurse
  • Paediatric Gastroenterology Consultant
  • Palliative Care Consultant
  • Palliative Care Nurse Specialist
  • PICU Consultant
  • Registered Nurse
  • Senior Lecturer
  • Senior Staff Nurse
  • Snowdrop Children's Palliative Care Nurse Specialist
  • Specialist Nurse PPC
  • Specialist Paediatric Physiotherapist
  • Specialty Doctor in Paediatrics
  • Staff Nurse
  • Team Leader - Children's Community Nurse

Organisations


  • Alder Hey Children's NHS Foundation Trust
  • Children's Hospices Across Scotland
  • Claire House Children's Hospice
  • Cork University Hospital
  • Ellenor Hospice
  • Evelina London Children's Hospital
  • Frimley Health NHS Foundation Trust
  • Great Ormond Street Hospital For Children NHS Trust
  • Hope House
  • Hope House and Ty Gobaith Childrens Hospices
  • Hounslow and Richmond Community Healthcare NHS Trust
  • HSE
  • HSE
  • Kent community healthcare
  • Medway NHS Foundation Trust
  • Midlands Partnership Foundation NHS Trust
  • NHS Grampian
  • Northern Care Allaince
  • Queen's Unviersity Belfast
  • Royal Devon and Exeter NHS Foundation Trust
  • Sheffield Children's Hospital NHS trust
  • Shropshire Community NHS Health Trust
  • Sussex Community NHS Foundation Trust
  • Ty Gobaith Childrens Hospices
  • University Hospitals of Derby and Burton NHS Trust
  • Virgin Care