NHS Online Study Day | Neonatal Organ Donation

Online forums Neonatal Palliative care

Thu 23 May 2024 09:30-15:50

Online Course

This immersive online study day will allow you to expand and refine your knowledge on neonatal organ donation. Walk away with newfound confidence in your understanding of when donation is possible. Equip yourself with the skills to handle difficult conversations with parents and carers about a topic which could transform their palliative care experience. Join us online to discover, learn and engage in neonatal organ donation with your course leader, Angie Scales, the National Lead for Neonatal Organ Donation.

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Incorporating Neonatal Organ Donation into your Service

Online 5.5 hours From £249+VAT

5.5 hours Continuing Professional Development: what you will learn

Are you looking to incorporate neonatal organ donation into your service? Do you want to expand your knowledge? If yes, this is the study day course for you! Book your place to focus on:

Developed with convenience in mind: join this NHS online course remotely

With an enhanced emphasis on networking, interactive discussion and idea sharing, this forum will provide you with all the elements you need to deliver change through:

This course is available for in-house training

9:30	Join, technical support and instructions
10:00	Chair’s opening remarks Angie Scales, Lead Nurse for Paediatric and Neonatal Donation, NHS Blood and Transplant
Understanding the new guidelines
10:10	Investigating the new impact of the new neonatal organ donation guidance Expanding your current knowledge of neonatal organ donation to provide an update and informed service Reflecting on the new national guidance and what they mean for you Applying the guidelines: benchmarking your service with the new standards
10:40	Questions and answers with Angie Scales
10:50	Interactive discussion: Incorporating neonatal organ donation in your service Describe your current knowledge level and experience with neonatal organ donation Share your concerns with incorporating neonatal organ donation in your service and how you are working to overcome your challenges How have you started to achieve your implementation goals in your service?
11:10	Screen break
11:20	Feedback from interactive discussion: Incorporating neonatal organ donation in your service
Meeting the criteria for donation
11:30	Which babies qualify for donation and how to encourage take up Deep dive into donation guidelines: When is donation possible? What is the process for neonatal donation? Case study: exploring practical examples of the criteria being achieved Investigating the opportunities for donation: overcoming the current limitations of neonatal organ donation
12:00	Questions and answers with Angie Scales
12:10	Interactive discussion: Sharing your current experience of neonatal organ donation Share your thoughts on when you think a baby qualifies for donation What opportunities have you had to offer organ donation to your parents? And if so, what criteria are you using to offer organ donation?
12:30	Lunch break
1:00	Feedback from interactive discussion: Sharing your current experience of neonatal organ donation
Communication with parents
1:10	Effectively approaching and supporting parents in their neonatal organ donation journey 'How to’ guide: broaching the subject of organ donation and what to expect when approaching parents Addressing timing and appropriateness: understanding when to communicate the opportunity for donation Inspiring a positive and confident workforce: equipping your team with the right knowledge to communicate successfully with parents
1:40	Questions and answers with Angie Scales
1:50	Interactive discussion: Elevating your communication and support for parents and carers Have you been approached by parents about neonatal organ donation and how did you manage the conversation? Describe a challenge you have experienced regarding communicating effectively with parents and your tips for overcoming it? Share a resource that has helped you communicate better with parents
2:10	Screen break
2:20	Feedback from interactive discussion: Elevating your communication with and support for parents and carers
The future of organ donation
2:30	Exploring next steps for neonatal organ donation in your service The future of neonatal organ donation: making it a routine end of life choice Projections to consider: opportunity for testing for brain stem death in neonates Topic exposure: sharing and strengthening your team’s knowledge on neonatal organ donation
3:00	Questions and answers with Angie Scales
3:10	Interactive discussion: Inspiring your actions for neonatal organ donation What are your main insights from today? What are your next steps for your service? How are you going to achieve the goal of making neonatal organ donation a popular option for your parents?
3:30	Feedback from interactive discussion: Inspiring your actions for neonatal organ donation
3:40	Leader’s closing remarks
3:50	Close of day

Share in first-hand experience

Your course leader, Angie Scales, is the Lead Nurse for Paediatric and Neonatal Organ Donation who is at the forefront of establishing the guidelines for Neonatal Organ Donation. Benefit from her national experience on neonatal organ donation:

Angie Scales

Job Title:

Lead Nurse for Paediatric and Neonatal Donation

Organisation

NHS Blood and Transplant

Biography

Angie is a Lead Nurse for Paediatric and Neonatal Donation at NHS Blood and Transplant UK, where she has worked since 2016.

She is a qualified and registered General Nurse and Sick Children’s Nurse.

Professional registration: Nursing and Midwifery Council UK

Professional Affiliations / Appointments: ESOT, ELPAT

Previous and other appointments:

Professional Development Specialist, NHSBT (2014-16)

Specialist Nurse Organ Donation, NHSBT (2010 – 2015)

Family Liaison Nurse, Great Ormond Street Hospital (2003-2010)

PICU Sister, Great Ormond Street Hospital (2000-2003)

Relevant publications:

1. Ali et al (2023) Neonatal Organ Donation: Retrospective audit into potential for organ donation in a single neonatal unit. Nursing Critical Care DOI: 10.1111/nicc.12943

2. Zimpfer et al (2020) Pediatric Donor Management to optimize donor heart utilisation. Pediatric Transplantation DOI: 10.1111/petr.13679

3. 3. Kirk et al (2020) ISHLT Consensus Statement on Donor Organ Acceptability and Management in Pediatric Heart Transplantation January 2020 The Journal of Heart and Lung Transplantation 39(4) DOI: 10.1016/j.healun.2020.01.1345

4. Organ and Tissue Donation Within Neonatal Palliative and End of Life Care (2020) Chapter: Neonatal Palliative care for Nurses DOI: 10.1007/978-3-030-31877-2_14

5. Scales, A & Bentley, H (2020) Organ Donation: Nursing Roles and Responsibilities. British Journal of Nursing 29(1):60-61

6. Weiss et al (2019) Development of a multinational registry of pediatric deceased donor activity. Pediatric Transplantation 23(2):e13345

7. Hawkins et al (2017) Current status of paediatric and neonatal organ donation in the UK. Achieves of Diseases in Childhood 103(3):archdischild-2017-313466 DOI: 10.1136/archdischild-2017-313466

Pricing Structure

You or a colleague can claim the group NHS discount, for booking four places across this and any other subsequent event, providing the same pricing structure applies. Click here to view the full list of up coming events.

For group bookings of five or more people, please email our delegate support team or call 01732 897788 for further details:

This course is available for in-house training

Available as bespoke training to teams of 30+ people. Please do contact us if you would like this course delivered exclusively to your team, with the content developed to drill into the specific needs of your service. Please email Sarah Kemm or call 01732 897788 for further details.

Commercial companies are also invited to sponsor this day. Please email Sarah Kemm for further details.

Reservations

You can reserve a no-obligation place whilst you apply for funding

How this online forum will work

Once you have booked your place, SBK Healthcare will correspond with you using the email address you provided at the time of booking. Within one week of the online conference taking place, you will be sent final details of the course including a full agenda, programme timings and your Zoom joining instructions. This email will include a joining link that can be used to access the conference.

If you have not received your email two days before your event, do check your junk folder then contact SBK Healthcare on 01732 897788.

Practice sessions are available. If you would like to attend a zoom practice session before the event takes place, please let us know by emailing bookings@sbk-healthcare.co.uk. You will have the opportunity to meet an SBK Healthcare staff member who will ensure you are able to access zoom, that your camera and microphone work and you are fully set-up for the day. This is optional but if you do wish to attend, please use the same device that you plan to use on the day.

On the day, when registration starts, you will be able to join the conference by initially entering a waiting room when there may be a short wait. The forum will include screen breaks, as well as topic themed interactive sessions which will take place in the breakout rooms.

Click here to view the specially created 5-minute video that will walk you through how to get the most out of attending your SBK Healthcare interactive online forum.

Terms and conditions

Certification of attendance

A certificate for Continuing Professional Development will be given to every fully registered participant who completes the course, as a record of your continuing professional training and development.

Registration fees

You will be sent an instant payment option or invoice on registration. Your payment is required in advance. If your fee has not been received prior to the event, and you are not able to provide a PO or proof of payment, you will be asked to make a credit or debit card payment on the day.

Modify registration

To let us know if your details are not correct when you have already registered, please email the bookings team.

Cancellations and substitutions

A full refund of fees will be made only for cancellations received within the first 48 hours of the booking being made. Notice of cancellation must be received in writing by emailing the bookings team at SBK Healthcare. Should you need to cancel your registration after this date, the registration fee remains payable in its entirety although a substitution will be accepted and conference documentation will be provided. Substitution attendees for delegates unable to attend after registering are acceptable at any time.

Event changes

It may be necessary for reasons beyond the control of the conference organisers to alter the content, speakers or the timing of the programme. We will endeavour to keep you abreast of such changes but any unavoidable change to the format will not constitute a reason to refund the fee. Should the event be postponed, we will endeavour to reschedule the event. If, for reasons beyond the control of the conference organiser, the event is cancelled, a full refund will be made. We do not accept any liability for any incurred costs resulting from a postponement or cancellation.

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Expected attendees

This online course is ideal for NHS professionals working within Neonatal, Paediatric Palliative Care and Bereavement Support Teams. It is also informative for NICU, Neonatal Community Outreach and newborn services along with local neonatal units. This includes but is not limited to:

Past attendee feedback

This online training day follows on from a history of hugely successful Neonatal and Paediatric Palliative care events. Don’t take our word for it, check out some of the feedback from our events:

“I felt the forum was well organised and a good range of relevant subject matter was covered”
University Hospitals Sussex NHS Foundation Trust, Enhancing your Neonatal Palliative Care, February 2023

“Very well organised and kept to time. I am a neonatal nurse (band 6) in the outreach service but have an interest in palliative care and found all the content brilliant”
Cambridge University Hospitals NHS Foundation Trust, Enhancing your Neonatal Palliative Care, February 2023

“Good mix of speakers / topics covered. Breakout rooms are a good addition to be able to find out what other teams are doing across the country”
NHS Grampian, Delivering Supportive Paediatric Palliative and End of Life Care, June 2023

“Really enjoyed the course, really given a good insight to challenges we face with palliative patients, nice to speak to others”
East Kent Community Health Children's Community Nursing Team, Delivering Supportive Paediatric Palliative and End of Life Care, June 2023

“Very informative and engaging. Thoroughly enjoyed and have taken a lot from it”
University Hospital Dorset NHS Trust, Advancing Palliative and End of Life Care, July 2022

“Excellent day, well planned and some really good speakers with so much knowledge”
Great Ormond Street Hospital for Children NHS Foundation Trust, Improving Paediatric Palliative and End of Life Care

Why sponsor?

Our role at SBK Healthcare is to bring industry together with healthcare professionals so that you can educate and inform your audience. These trail-blazing diabetes delivery forums offering dedicated presentations, Q&A, networking and discussion time, each sponsor will be fully immersed into the event and able to effectively engage with your NHS audience.

Interested in having your own event, managed by us?

SBK Healthcare also provides in-house forums. Working closely with you as the client we can research, produce, market and deliver the conference or online forum that best suits the audience and meets your goals.

Incorporating Neonatal Organ Donation into your Service